A footnote in the testing said he is also on the spectrum for a rare, genetic form of epilepsy called Dravet syndrome. His first prolonged seizure also prompted a prescription for a nasal spray seizure rescue medication. Photo Courtesy Of Holly KearlI found and made appointments with three Dravet syndrome specialists out of state. They all agreed his seizures were frequent and severe enough that he should take medication targeted for people with Dravet syndrome. I see how they helped propel me to find a more specialized neurologist, targeted medication, more effective rescue medication and a support group that has become a lifeline.

Source: Huffington Post November 17, 2025 13:29 UTC