Several times during the past year, the Abdis and Firkins have shared cups of ginger tea, occasional evening meals and discussions of spirituality. Ali and Fartun appreciate their new friend's calming presence and the handyman skills demonstrated when he helped refinish dining room furniture. For Ali and Fartun, it's their second time witnessing stages of rapid decline in a child of theirs. Ali has cut down on trucking jobs to be available at home to care for his daughters. United Leukodystrophy Foundation's director of operations, Keely Haag, is helping the couple connect with other parents of children afflicted with the same genetic disease.

Source: The Star May 04, 2021 02:00 UTC