Caitlin Passey was diagnosed with Juvenile Batten Disease in October 2021 – an inherited disorder which affects her nervous system, eyesight and means her “brain is forgetting to do stuff”. Nick Passey with his daughter Caitlin (Nick Passey/PA)Since then, her family have been trying to balance adapting their home in Cambridge with making their way through an “ever-increasing” bucket list created in April 2022 by the youngster, as her condition continues to deteriorate. Building work on the family’s home began in January 2023, with the majority completed, except for Caitlin’s room. Caitlin Passey with singer Ed Sheeran (Nick Passey/PA)Mr Passey said: “We had to make the conscious decision to really work on the house, which has been devastating. More information about Caitlin’s situation can be found on Facebook: https://www.facebook.com/profile.php?id=100083028024040The family’s fundraising page can be viewed here: https://www.gofundme.com/f/adapted-bedroom

Source: The Times February 04, 2024 20:36 UTC