In 2017, she met Pope Francis, who was hosting families affected by Huntington’s for a blessing at the Vatican. In 2018, she ran the New York City Marathon to help raise money for the Huntington’s Disease Society of America. “It definitely made me look at things differently,” Katie told me recently. It may be easier to live without knowing. “I don’t advise them to not get tested, but I do advise them to just, you know — to think about it,” she told me.

Source: New York Times July 14, 2021 10:30 UTC