As reported by this newspaper in December, she was critically ill with cystic fibrosis, the genetic disease that kills half of sufferers before they reach the age of 40. It dramatically improves lung function and has been dubbed ‘the holy grail’ by both patients and doctors who treat the disease. ‘I find it astonishing it’s not been made available.’For the vast majority of British cystic fibrosis patients, the drug remains out of reach. And while Orkambi and Symkevi work for fewer than 45 per cent of cystic fibrosis patients, Trikafta is effective in 90 per cent. With her lung function deteriorating rapidly, an illness such as Covid-19 could be catastrophic.

Source: Daily Mail June 20, 2020 21:02 UTC