More clarity is also needed on issues surrounding newborn DNA testing, including consent, accessibility, data privacy and the potential changes to medical practice and costs. What ethical issues guide newborn genetic screening? Lunshof explained that when genetic screening is offered to adults, there's an "ethical requirement of informed consent. Could newborn genetic screening lead to discrimination? He also questioned, along with Lunshof and Powell, whether the newborn genome sequence data could be kept private and secure.

Source: CNN January 06, 2019 14:03 UTC