Skyla was always smiling (Image: Stacey Reynolds)Sufferers don't typically live beyond early adolescence and the syndrome primarily affects the brain and central nervous system, deteriorating over time. Stacey said her daughter was always trying to make people laugh (Image: Stacey Reynolds)"I just secluded me and the kids from everybody." Skyla loved singing, dancing, her siblings and horse riding (Image: Stacey Reynolds)She added: "That's just how it was. Meanwhile, she said other healthcare professionals were advising the family Skyla could be taken home and said she would be around for the next few weeks. Do you have a story or a tribute for a loved one you'd like to share?
Source: The Times January 21, 2024 11:06 UTC