Ardi Izzuddin Zabidi, 16, has an ultra-rare disease that only strikes less than one in 250,000 babies. His condition is so rare that he is the only person in Malaysia known to have it. “After two or three visits, they referred us to HKL (Kuala Lumpur Hospital),” says Ardi’s father Zabidi Ali, 53. Thus began a whole battery of tests to determine exactly which type of MPS Ardi had. For Zabidi, Ardi’s free treatment is “macam bulan jatuh ke riba (like the moon fell on your lap)” – something that was totally unexpected.

Source: The Star December 28, 2022 05:05 UTC