But McArthur and Williams want to understand far more about Bryson’s preferences, what he’s thinking and, most importantly, what he needs. Bryson's parents hired a caregiver, Edna, who looks after him after school each day. One doctor cautioned McArthur and Williams that they might never learn the cause of Bryson’s limitations. When he had this test at nine months, Bryson's parents were told it would take three months for the test results for SMA. Williams checked in a month later, and when the nurse started to give her the usual brush-off, Williams pushed back until the nurse agreed to check Bryson’s file.

Source: CBC News May 30, 2020 00:56 UTC