My son William persevered from the womb. Being a parent to a child with a chronic illness is like feeling your lungs collapse and then breathing through a straw. All of the manuals and instructions in the world couldn’t mentally prepare me for the grief I felt over my son’s illness. William’s diagnosis means that I don’t allow him to go to sleepovers unless the parent is adequately trained to attend to my son’s needs. But through his diagnosis, I am reminded that he is more than just a child with a chronic illness; William is my heart.

Source: Huffington Post January 21, 2018 10:41 UTC