An award-winning photographer is embarking on a “crazy” winter mountain challenge to help give a seriously ill baby an extra chance of life through the “most expensive drug in the world”. Ms Walton and Mr Powell said he has very poor prognosis as 95% of babies with SMA do not live past 18 months without effective treatment. So, they are putting their hopes in a treatment available in the United States called Zolgensma, which they believe could dramatically prolong Marley’s life expectancy. Despite this, Mr Giddens has set himself the target of making it up and down nine times, which would be the equivalent of climbing higher than Mount Everest. To think we’ve had our baby and it should be the most special time of the year – his first Christmas.

Source: Irish Independent December 06, 2020 10:30 UTC